A small Danish qualitative study explores how young people with anorexia experience the shift from family-based treatment in ...

Gene therapies have extended survival in muscular dystrophy, requiring improved care transitions from pediatric to adult systems. Current systems lack adequate staffing, specialists, and communication ...

Please provide your email address to receive an email when new articles are posted on . There are various patient, family, provider and system factors that act as barriers to transitions. The ...

Patients with DMD or BMD encounter difficulties in daily activities, education, and employment during the transition to adulthood. Having more siblings is associated with increased readiness for ...